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Voices from the Shadows
Release Date Autumn 2011. Invitation to show at a prestigious international film festival. Genre Documentary About http://vimeo.com/24683179 Description A compassionate and moving exposé, bearing...
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Llewellyn King Continues to Fight for Us: MECFS Alert Episode 1 (Parts 1 and 2)
Llewellyn King, a Washington columnist and executive producer and host of “White House Chronicle” on PBS, and his friend, Deborah Waroff, a New York writer and ME/CFS sufferer for 22 years, have...
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Mildly Disruptive
ME/CFS desperately needs media coverage to raise awareness, but almost all reporting on the illness hurts the patient community because it grossly understates the seriousness of the disease. This Today...
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What Might Cause ME? (Part 1) (From Get Well From ME)
For more of Giles Meehan’s brilliant videos about ME/CFS, please go to his website.
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Voices From The Shadows—World Premiere and Panel Discussion
“Voices from the Shadows,” a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients, including children, by the British government and medical establishment, most...
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Misunderstood: Check—Mate
“The irony to me about that situation that we all chronically live in is the harder you try to protect the people around you from being uncomfortable with the fact that you are sick, the more invisible...
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Llewellyn King: The Silent Suffering
Llewellyn King’s latest piece about ME, “Chronic Fatigue Syndrome: The Silent Suffering,” was published today in the Open Salon. Mr. King, with his signature style of elegant and no-nonsense language,...
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“I am tired, too” Revisited
It’s been a rough week: I did a VO2 max test, a two-day neuro-cognitive test with a neuro-psychologist, a brain MRI and a neurological exam with a neurologist. VO2 max is a short, but intense—at...
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About Doctors and Facebook Friends
Ampligen Hope My next blog entry was reserved for my recent medical tests and appointments, but I am still processing all those and haven’t come out yet from under the mountain of new information. I...
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Blank Stares
My biological family is not more dysfunctional than others. I lucked out there. But, and this is a big caveat, it is not at all equipped to deal with a neuro-immune disease that has put an end to my...
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